Run for Williams Syndrome

Name: Run for Williams Syndrome
Address: AU

Raising Awareness.

Run for Williams Syndrome exists to raise vital funds for Williams Syndrome Australia and increase awareness of this rare genetic condition.
We are driven by a simple goal: to shine a light on Williams Syndrome, support the organisation doing critical work, and help more people understand the realities families face every day.

Williams Syndrome Stories & Awareness

Explore our collection of video highlights from our fundraising runs, and the inspiring stories of our community members.

What is Williams Syndrome?

Williams Syndrome as narrated by the lovely Mrs B from My Brain Books.

Williams Syndrome segment on: The Project (2023)

Williams Syndrome Is A Heartbreaking Syndrome That Can Fill Lives With Joy And Reward

Williams Syndrome segment on: The Kathie J Show (2022)

Kathie discusses what Williams Syndrome is and raises awareness on how we can all help.

Three Tip Talks: Going through a rare diagnosis

We chat with Mrs B from My Brain Books on tips for going through a rare diagnosis.

International Model with Williams Syndrome

Mamie Rose lives in Ponsonby, Auckland City. She is a spritely 21 year old and lives with Williams Syndrome. Mamie is a model who has done shoots for Vogue Italia and other international brands.

My Little Sister Has WILLIAMS SYNDROME | Birch Family (2020)

Williams syndrome (WS) is a genetic condition that is present at birth and can affect anyone. It is characterized by medical problems, including cardiovascular disease, developmental delays, and learning challenges. These often occur side by side with striking verbal abilities, highly social personalities and an affinity for music.

Run for Williams Syndrome

Every step we take is for children and families living with Williams syndrome 💛

Upcoming Events

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Every contribution brings us closer to a world where every child with Williams Syndrome can thrive.

For many Australian families, Williams Syndrome Australia is the place they first find answers, community, and hope after diagnosis.

Every donation—big or small—helps make sure families are not walking this journey alone.

Thank you for helping support this community.

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